Our little Scuba Diver

Day 8

Okay,  so she is not happy in this picture, but the good news is that she can sit up by herself! That is a big milestone after surgery. Unfortunately she has to wear this bulky mask for who knows how long. She has been doing better today and her carbon dioxide levels have gone down, but they are still not where they should be. Ava isn't quite herself today. For a large part of the day she was awake but in a daze. There was one point where I was drawing next to her and I showed her the picture and she grabbed my colored pencil and hit it against the paper making a lot of marks. It was very cute and I was proud. Ava doesn't get the best sleep because people are always coming and going in the PICU, but we try to make her comfortable. Morgan and I were saying today what a stupor our minds get into when we hang out in this hospital all day. The days all run together and we always seem busy but there really aren't that many different things we do. Mainly standing by Ava's bedside helping her to calm, or taking care of business. We found out from Doctor Campbell that we need to come back in 3-4 months for the second VEPTR, so that's a little sooner than we thought, and right in the middle of the semester. Thinking about real life is hard right now. School is very important, but not as important as this. It's a great balancing act indeed.