Day 10
Today was the first day Ava smiled and laughed. She was much more herself today. She got to have 3 breaks from the BiPAP and loved every minute of it. She still has to have it, but her carbon dioxide levels have gone down to a very good level. We are so grateful for that. We will have to see if she can keep her levels down without the mask, if not than she will have to have it at night. She was a lot more active today(compared to laying around in bed) She sat up quite a bit, and even stood up when leaning against me. We have to be careful not to push her to hard because she is still very weak and shaky. Her pain seems to be pretty much under control now. She is still on tylenol and one other medication, but she hasn't had to have morphine since thursday. She might be having a little withdrawal from it, but nothing too extreme. We are planning on posting her x-rays soon, to show how much the VEPTR has changed her. It will take around 6 weeks for her to get back to normal, but in the mean time she will have to get her cleft palate repaired. Poor girl. So many surgeries in such a short time! One day she will catch up, but she is doing so well developmentally for all of the setbacks. She was talking a lot more tonight and we were all having a grand time. I'm so glad things are looking up.
3 comments:
I have been reading your posts each night but this is the first time I've been able to comment. Thank you for sharing this with us! She is so adorable and I love to hear about how well she is doing and you guys are handling it all so well. Its so great you are keeping this record of it for your own self too. I know you will be glad that you did. She looks like she is growing more and more every day. Her face in this picture here is looking so grown up. Soon she will be running around and playing and this will seem like it went by so fast.
Love you guys!
I can't get over how cute that picture is.
I love her expression and drooly mess.
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