Home now

We got home last night after being in the hospital for 6 days. Ava had to come home on oxygen and will have to be on it until she can get her breathing under control. It doesn't make sense to me why she still needs it now, but we know that her oxygen drops low when she gets upset or has to work harder for anything. We will keep her on it until she can keep her oxygen saturation levels up all the time. She is happy though, and waving to everyone she meets, plus she says mama pretty clearly now and I love it!

Oh Ava!

Well, here we are again. The Hospital. We got back to Utah on Monday, but Ava had an accident so we are at Primary Children's now. I took her to the doctor's on Thursday morning and the doctor said it would be okay to take Ava out more, so that is what I did. And, that is where it all began. I decided to take Ava to a fabric store and put her in the stroller. We were having a grand old time looking at fabrics and letting Ava feel the different textures. After a little while I heard her gagging, so I ran over to her and picked her up quickly so she wouldn't throw up. As I pulled her out,  her stroller fell over and her legs got caught under the tray on the front of the stroller. All of this this jolted her body in a very unnatural way. This happened in a matter of seconds but it felt like forever. She screamed inconsolably for about 15 minutes and I got her out of the store but she was really fussy. I thought for sure something terrible happened to the VEPTR, so I called the doctor and we had it set up to get x-rays the next morning. In the middle of the night though, we woke up to her throwing up and breathing unbelievably fast so we decided to take her to the ER at Primary Children's. They said the VEPTR looked okay but couldn't figure out what was wrong at first and eventually discovered that she had fractured both of her legs. The worst part is that her breathing got worse and worse and her lung started to collapse a little, so they have her in the Intensive Care Unit trying to sort it out. She is on high flow oxygen and has to wear splints until they can put casts on her legs on Wednesday. She had a much better day today and was happy a lot but still breathing fast and very heavy. This is all so crazy! Unbelievable! I feel so horrible. We are hoping that she will begin to breathe better on her own, but for now it is kind of a mystery.

Ava clapping and in good spirits